Tag Archives: fibro

Enjoying the little things

I don’t have particularly fond memories of school. I stood out in Primary for being the first in my class to have divorced parents and then we had the only Stay at home single Father who was loved and adored by all the mothers and even the all female staff. When I moved to Secondary I was placed in a very small class (18 students) of exceptionally gifted and talented 11 year olds. It seems I had a natural gift for English and Maths which put targets on all of us. We were the geeks and/or nerds of the school and expected to lead the way for excellent results during the next 5 years. My saving grace was an incredible group of friends. 

We were a quirky lot, got down to work when we had to but also found the time to laugh and break the stress of the day. We all dressed in black one year to fundraise, one of us could speak passable Klingon, another hid a shed full of animals and is now a Vet Nurse. We were good for eachother and I made some life long friends who will never understand how much they meant to me at a time when I felt extraordinarily lost. 

One of the girls and I had a very up and down relationship; she was my bestfriend and also my achilles heel. She knew so many of my secrets and she occassionally slipped up and would dump me in it with one boy or another that I was head over heels in lust with and it would all end in tears. Looking back it was fairly typical teenage hiccups but, also, I thought of her as a cousin or stepsister. That’s the relationship we had. I told her all the darkness and she would try to find me some light. I put up with her catty side because I loved her dearly and it was nothing to the way my own sister treated me. Her family were, and are, awesome. Her parents are some of the coolest going and they never seemed to get fed up with my constant visits. They are truly diamonds of the South.

My bestie and I fell out around the time of our GCSEs. It was a biggun and it took me a very long time to forgive. Too long. We would find eachother over the next 14 years and have a quick catchup. I was at a different point in my life to my school friends. Happily married, a houseful of kids, chicken pox, washable nappies, and the start of my aches and pains. She was a working woman, living her life the way she wanted to and still getting through her own baggage. 

Then we hit 30 and whilst I was still making babies, she was starting a rollercoaster that she never planned on. 

She was having shoulder pains which they were struggling to indentify and eventually a bit of a push from mum about an “unrelated” issue made the doctors look a little deeper. Yeah, cancer. This woman who had lived her life in the positive had been hit with a killer blow. That’s when it stopped being about where we were in life and it came back to a group of friends who had each others backs. 

I had missed my bestie. The odd sense of humour, the dark laughter, the sage advice. I was glad to be able to reconnect even if the circumstances were less than ideal. Oh, who am I kidding? Less than ideal? They couldn’t have been worse. It shouldn’t have taken cancer to bring us back together. Any hurt that happened half our life time ago should have been well and truly buried. It was buried. I knew that we were a couple of teeny boppers just finding our feet and hurting inside because of things we had no control over. 

We laughed again, giggled inappropriately, enjoyed giant yorkshire puddings and afternoon tea. It was simple. I want anything for it to be simple again. 

Her cancer isn’t shy. Her Doctors have been doing a fabulous job at pushing it back, holding the flood gates. The multipe surgeries have helped, certainly she finally got the breast reduction which had always been a back seat “one day” – something we had a dark laugh about. We also chatted about the special one of a kind face mask they use to hold her head completely still for targetted treatment. She tells us that there are these fabulous murials on the ceiling rather than crappy hospital tiles. The staff are extraordinary too. They go above and beyond to make sure that all of their patients are as comfortable as possible. 

We often moan about waiting times, prescription costs, time hanging on the phone whilst sorting out appointments, and yet, our NHS has gone above and beyond to help my beautiful friend. It does so every single day around the UK. 

That word seems to be said so often now. Cancer. There is sound scientific reason behind it too. We have a 1 in 2 risk of being diagnosed with cancer across the course of a lifetime. That’s some seriously scary odds. The good news is that we are increasing the odds of surviving every single day so for the majority of people who get dealt the Big C card, they will beat it and go on to live happy, healthy lives. www.cancerresearchuk.org

My friend got given the rubbish hand. She has managed to hold off her ending for longer than she was first told. I am so glad she did. I found my friend again, just when I needed her. I’m so incredibly blessed. She has helped me to live again, just at a point where she can’t. Hold your loved ones close today and everyday. Don’t weigh yourself down with hate, work through it and let it go so you can enjoy the daily grind – okay, not enjoy but you have to count the days that are normal as a good thing. I do the night rounds at home, checking in on each child, removing the hard plastic dinosaur, tucking teddy back into bed to avoid an early wake up alarm to find him, turning off the cd player, and brushing the fallen locks off the faces. Today has ended well and I enjoy knowing that we made it through another day. 

I don’t know what happens next, I suspect it will be awful. I want to remember the little things like daisy chains and pizza parties, blue lemonade and bent chips. It’s the little things that matter the most, they all add up and make amazing memories. Yesterday, Today, Tomorrow. I’m glad I have the opportunity to revisit, to make anew, and find time to look back.

Love you, V xxx

Hormones

It seems like our household is run on those tricky parts of the human system and it is terribly difficult to navigate.

Personally, I had the implant embeded a couple of years back. I am not overly keen, I never wanted to override my bodies own balance in such a way but we hadn’t made a decision about our families future so this gave us breathing space for three long years. Between this and long term breastfeeding my periods have stopped and my empty switch seems to have disappeared as my belly has increased considerably. In fact, I lost a none too shabby 2.5 stone just before deciding on the implant and I’ve gained that and the same again since. I am now hovering around the largest I have ever been and I’m not best pleased with it. I have also been put on some serious anti-depressants to try and counter the Fibro symptoms which may have helped the gain. Sucks to be me this year. The pain is so intense right now so exercise is not an option, even a short walk around Lidl has me beat and makes the rest of the day a right off. At least I don’t have mood swings anymore.

The big girls are all flooding with the damn things! All day, every day, one after the other we will work through an emotional outburst. Generally, it is easily dealt with, nothing outrageous or unmanageable but they seem to be a catalyst for the next big bang. I know the theory of all this but I never imagined just what a minefield it is. Suddenly a simple clothing suggestion becomes an on switch for a plethora of self doubt and accussations of sabotague. I swear, one day my head is going to spin so fast that it will fly off like a spinning top. There is no way to keep up with three teens who are all competing with themselves, each other and the social media peer group which I would quite like to take a massive delete button to. The messages coming from the images, memes, and quick quotes on Snap This and Insta That are a ginormous boiling pot of misery masked as sympathy and “advice”. We are the lucky family that are tech savvy and switched off enough to talk to each other and work through some of the damage these social groups can cause. When I hear tales of their real life school peers, the time they spend interacting with trolls and frenemies, the backlash they experience for wearing the wrong brand or not being quite “on point” with the latest eyebrow shape, I shudder and allow an audible profanity to escape whilst describing these faceless internet users. The boys are no more protected from this mockery and hate filled onslaught, they are just more likely to internalise the self loathing this invisible bully causes. No wonder that depression, anxiety, self harm, & low self esteem are hitting terrific highs in recent studies. The lack of personal, non-study based classes in the UK has to take a hit on this too. If we do not take the time to educate our young people about the positive role they can and will play in society, the impact their future job or position could help to raise the sense of self worth, and just the ability to decipher the hideous circus that the World Wide Web can so often be.

Our Big Lad has his own horomonal battle to fight. If it isn’t bad enough that his body is producing an abundance of the “wrong” hormone for his personal body preference, he also has to take a different hormone based prescription to help counter balance this cruel reminder that somehow, somewhere, something went a bit skew whiff. He has been considering blockers for a good long while now and it is the likely route he takes on his path to finally taking testosterone. This has it’s own complicated set of checks and balances, as well as a huge list of unknowns for this relatively new regime.

As a mother I’m finding this all a great deal to take in. For a 16 year old taking GCSEs (or whatever the damn certificates will end up saying) this must be a consideration which takes up more time than you’d prefer to allow as you chart out a revision timetable and pencil in study groups and classes running before and after school. I wish that I could make this process easier, to take away some of the stress and strain but it isn’t in my power. I get to sit back and offer a listening ear and the taxi service to various appointments, classes, and youth groups. 

To think, all those years ago when we first planned a large family, I never really gave much thought to how challenging this part of parenthood could prove to be. Now I’m living it I can confirm that it is as tough as all those commentaters have joked over the years but I can also confidently say, even with the teenagers, and the Threenanger, and the Queen Bee baby of the bunch, the Smiler, and the Boy – I would do this all over again. 

Despite the drama, the mayhem, and the sheer overwhelming need for reassurance that hormones seem to elicit, my young people are coping in a way I can only dream of. The sheer awe that I feel when I see each of them find their path through the hurdles and the set backs is almost beyond words. Our eight wonderful, individual, unique, and outstanding examples of the beauty that dna can create far outweighs this mass hormone onslaught. This is what gets me through, that and knowing that one day they may well experience a little of this rollercoaster with their own dna experiments. 

Mothering the hard way

I was fairly young when I became a mother. I had turned 18 about six weeks previously and had just taken the keys to my first home. 

I can tell you that from a very young age, all I could think about was jobs that helped people and being a mummy. I played with dolls for a lot longer than I would admit to my peers, I recall quite clearly wanting to breastfeed too which seemed quite alien having never actually known anyone to feed in this way. I loved the idea of cloth nappies and baby clothes hanging on the line to dry, trips to feed the ducks and hiding behind my fingers as I listen to a little voice saying “watch me, mummy!”

Nobody warned me about the sleepless nights – well they did but I thought it meant the occassional night because of teething or a bit of earache. Why did no one tell me that some babies just don’t sleep? Seriously. I’m pretty certain that The Boy got by on these 20 second cat naps for a solid three years. I am not exageragerating. There was only one night when he slept for very long whilst my breast was out of reach and I used it to escape. My depression was at the point where I just kissed him goodbye, nudged the Mr to look after him and I fled. 

It was gone midnight, I parked at the top of a hill which meant I had a clear view of our local area and I cried until I ran dry. It was also across the road from my younger sister and my heart leapt when I saw her light go on at near 2am. She welcomed me in, gave me tea, listened to my rantings and bemusedly told me that there was nothing she could do, I had to seek out help for myself. I wanted to cut her tongue out and feed it back to her. She was, of course, quite right. No one could help me but myself. I arrived home to the familiar sound of my tiny son’s wail and knew I was back where I belonged. Still wanted to kick my little sister under the table for being a know it all.

Also, dithering. I never dithered before children. I wanted to achieve something so I did and if I didn’t I just tried again. Or not. It wasn’t a big deal. When you’re a mother every decision counts. It starts before they are born with finding out the gender, writing a Birthing Plan, choosing pain medication, to give Vitamin K or not, to swaddle or wrap, to bottle or boob, choosing a name, a cot, a nappy brand….. When you reach the stage where you are choosing their educators you freeze all over again. You ask yourself why it took so long to settle on the Supermarket label over Big Brand Names when *this* choice is the one that really matters. I cheated. I couldn’t work out what I wanted from a school so I just let the council decide for me by submitting the forms late. This is not a recommendation. We were thankfully offered a place at the first choice school about 2 weeks after the Firstborn started which was handy because so far I really didn’t like the second place school we were given.

I thought I would do things differently when time came for secondary choices but it was no easier and I darn sight harder. Five years later, at the end of secondary school life, I’m still unclear on if we made the right decision but I think it’d been mostly okay. Best of a poor bunch possibly.

And that’s just the important stuff. Accepting the vegetarian declaration followed by another child being a pescatarian was a bit of a nail biter. Allowing Tellitubbies back into my life? I wish I had the choice to say no! I swear, the smalls know how to navigate our tellevision setup better than I do. That’s the other big small issue. Tech time. The (nearly) seven year old comes home with Internet based homework. With each year they spend in school the tech time needed continues to climb. I can’t even say much because, well, the Mr is Mr IT. He spends all day fiddling and fixing technology so it seems only wise that schools are cluing in to this situation and making students tech savvy but that ultimately means that the children have more screeen time each day than they do PE or playtime. 

Everyday I’m winging it. I have no guru waiting with sage advice, there is no one size fits all “idiots guide” and the only advantage I have over most others is that we have enough children to keep experimenting and trying to get it right.

I don’t think I’m doing too badly either. The strength of their characters is plain for all to see, the spirit with which they each grab life keeps me on my toes and astonishes me daily, their warm, kind, giving, generous hearts is often mentioned by those around us and we both consider ourselves blessed to end each day with our children having taught us more about the world, the human race, ourselves, than when we awoke. 

I find children to be so utterly enthralling. Yes, of course I have days when I am just glad that *my* bedtime has finally arrived but I would never choose a do over. I’m ready to start a new day and see how many lost shoes there are, how many chocolate krispy cakes survived the night, and how just one night will have altered at least one of us just enough to say that our family has grown in one way or another. 

There may well be 10 in our bed but not for all the riches in the world would I change it. I am already the richest of mothers and though it may be very hard at times, I’m loving every minute of it.